PBC Awareness
(opens in a new tab)PBC Awareness, NFP is an independent, founder-led and board-governed 501(c)3 dedicated to elevating patient voice, advancing education, and expanding national awareness of Primary Biliary Cholangitis (PBC)
Congratulations to our PBC Awareness community member Tricia Davis for her spotlight article in the Columbus Ledger-Enquirer! She is showing the world that PBC won't slow down her love of running. We support you. You're a true inspiration to us all!
Keep running!
#PBCAwareness #PrimaryBiliaryCholangitis #rareautoimmunedisease #liverhealth
Chronic liver disease can’t stop this 74-year-old Columbus marathoner
www.ledger-enquirer.com
“I’ll be happy as long as I can keep moving. That keeps me going.”
🚨 EXCITING NEWS FROM AASLD: NEW DATA ON PBC ITCH RELIEF IS COMING! 🚨
The 2026 AASLD Liver Meeting kicks off this week in Denver (Nov 5–9), and there is major buzz around linerixibat (LYNAVOY) — a newly approved treatment specifically for the debilitating itch (cholestatic pruritus) associated with PBC.
Alfasigma and GSK just announced they will be presenting five new analyses from the Phase 3 GLISTEN study and real-world research. Here's what the data is looking at:
🔹 What "meaningful improvement" in itch actually looks like for patients
🔹 The real-world gaps in how itch is currently managed (too many patients still go untreated!)
🔹 How the medication affects metabolic profiles and vitamin absorption
And guess what? PBC Awareness, NFP will be there in person! 💚
Our team is on the ground in Denver at Booth #935. We will be attending these sessions and keeping our ears to the ground for all the latest updates. We will report back to YOU, our patient community, to keep you informed and empowered with the newest research and treatment options.
Stay tuned to our social channels this week for updates and takeaways from the conference!
👉🏾 What questions do you have about PBC itch or this new treatment? Drop them in the comments and we'll try to get answers while we're there!
#PBCAwareness #TheLiverMeeting #PBCItch #AASLD2026 #LiverHealth #PrimaryBiliaryCholangitis #PBCCommunity
www.manilatimes.net
Five presentations will highlight new analyses of linerixibat in cholestatic pruritus associated with primary biliary cholangitis, including an oral presentation and four posters from the Phase 3 GLIS...
We hold monthly (virtual) Community Conversation mixers on the 1st of every month. Join us for an hour of discussion, updates, PBC comradery, and of course, your chance to win a gift card!
#PBCAwareness, #PBC #PrimaryBiliaryCholangitis #pbcmixer
NOVEMBER IS NATIONAL FAMILY CARE GIVERS MONTH!
To the spouses, partners, adult children, parents, friends, and loved ones who show up every single day for someone living with Primary Biliary Cholangitis (PBC) — we see you, and we celebrate you.
Caregiving for a PBC patient is a role that often goes unspoken. It’s the partner who notices the exhaustion that fatigue brings and quietly takes over household duties. It’s the family member who helps apply cooling compresses during a severe pruritus (itch) flare-up at 3 AM. It’s the loved one who sits in waiting rooms, takes notes during hepatologist appointments, and helps navigate the complex world of liver health.
PBC is an invisible illness, which means caregivers often carry an invisible load. You are the advocates, the listeners, the drivers, and the safe place to land when the journey gets overwhelming. Your love and dedication make a profound difference in the quality of life for those managing this disease.
This month, we honor your strength, your patience, and your unwavering support.
👇🏾 To all the PBC caregivers out there: drop a 💚 in the comments so we can celebrate you today.
#NationalFamilyCaregiversMonth #PBCCaregivers #PBCAwareness
Community Conversations: PBC Impact on Black Women
Real PBC Talk: Beyond Tired Official Teaser Trailer
PBC Awareness, NFP was a featured guest on Behind the Mystery: Rare Disease Stories on Lifetime
International PBC Awareness Day
FOX 32 Chicago Interview
Alfasigma pharmaceutical company gifted PBC Awareness with a generous $5,000 grant.
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