PBC Awareness – PBC Awareness " emerges as a transformative organization dedicated to serving those affected by Primary Biliary Cholangitis (PBC) in the United States.

IMPORTANT ANNOUNCEMENT

Today marks an important new chapter in our journey.

I’m proud to share that Friends of the PBC Foundation, NFP will now move forward as PBC Awareness, NFP — a name that reflects our growing vision, our independence, and our unwavering commitment to the Primary Biliary Cholangitis community here in the United States.

This transition represents more than a name change. It’s about strengthening patient voice, advancing health equity, and creating space for advocacy, education, and support that centers people living with rare liver disease.

To everyone who has walked alongside us — patients, caregivers, clinicians, partners, and community leaders — thank you for believing in this mission. Your support continues to help us build something meaningful for those who often feel unseen.

We are still here. We are still advocating. And we are just getting started.

Follow along as we introduce new programs, partnerships, and opportunities to get involved with PBC Awareness, NFP.

RARE DISEASE DAY 2026 RESOLUTION

Cook County, Illinois, has officially designated February 28, 2026, as Rare Disease Day and March 25, 2026, as Illinois Rare Disease Day! We would like to extend our gratitude to the state of Illinois and our representatives for their commitment to the 530,000 citizens diagnosed with rare diseases. Your recognition plays a vital role in raising awareness and providing support for rare disease patients and their families.

Thank You!