PBC Awareness
(opens in a new tab)PBC Awareness, NFP is an independent, founder-led and board-governed 501(c)3 dedicated to elevating patient voice, advancing education, and expanding national awareness of Primary Biliary Cholangitis (PBC)
💚 BIG NEWS! WASHINGTON, D.C., HERE WE COME!
📣 SAVE THE DATE: SEPTEMBER 10–13, 2027!
In celebration of PBC Awareness Month and International PBC Day, PBC Awareness, NFP is excited to announce our 2027 PBC Patient Education Conference in the Washington, D.C. area! 🎉
💚 This is more than a conference. It's a movement to elevate patient voices, empower lives, and strengthen our PBC community!
We're bringing together patients, caregivers, healthcare professionals, researchers, and advocates for an unforgettable opportunity to:
✨ Learn about the latest PBC research, treatments, and advancements.
✨ Connect with leading medical experts and fellow patients.
✨ Explore resources to navigate life with Primary Biliary Cholangitis (PBC).
✨ Build meaningful connections and strengthen our patient community.
✨ Amplify patient voices and advance health equity in rare liver disease care.
Whether you're newly diagnosed or have been navigating PBC for years, YOU BELONG IN THIS ROOM!
📍 Washington, D.C. Area
📅 September 10–13, 2027
💚 2027 PBC Patient Education Conference
Additional details regarding registration, accommodations, speakers, and opportunities to participate are coming soon!
📣 HELP US SPREAD THE WORD! Tag a PBC warrior, caregiver, or healthcare professional who needs to know about this exciting event.
🌐 www.pbcawareness.org
#PBCConference2027 #PBCAwareness #PBCDay2027 #PBCAwarenessMonth #PrimaryBiliaryCholangitis #PatientEducation #LiverHealth #HealthEquity #PBCWarriors #WashingtonDC
🚨 BREAKING NEWS FROM AASLD #TLM26! 🧬
A MAJOR MILESTONE IN PBC RESEARCH!
Exciting late-breaking data presented at The Liver Meeting® 2026 in Denver is raising expectations for the treatment of Primary Biliary Cholangitis (PBC)!
🔬 Results from the Phase III ELSPIRE study show:
✅ 85.3% of patients receiving IQIRVO® (elafibranor) achieved normalization of alkaline phosphatase (ALP) at Week 52, compared with just 23.3% receiving placebo.
✅ IQIRVO was generally well tolerated in the study.
✅ Findings support growing evidence that ALP normalization may be an achievable treatment goal for more people living with PBC.
📢 These findings are being presented as late-breaking research at #TLM26 and simultaneously published in AASLD's prestigious journal, HEPATOLOGY.
💜 WHY THIS MATTERS TO PATIENTS:
For people living with PBC, ALP is an important marker of liver health and treatment response. Achieving normal ALP levels represents meaningful progress toward improved disease management, although it does not necessarily mean the disease is cured.
At PBC Awareness, NFP, we're encouraged to see research advancing treatment possibilities and raising the standard of what patients and healthcare providers can strive to achieve.
Because patients deserve more than managing their disease. They deserve hope, innovation, and better outcomes!
🔗 Read the announcement:
www.ipsen.com/us/press-releases/iqirvo-late-breaking-data-raises-ambitions-in-pbc-with-more-than-85-of-patients-on-treatment-achieving-alp-normalization-3396826/ via Ipsen
💜 Elevating Patient Voices. Empowering Lives.
#PBCAwareness #TLM26 #AASLD #PrimaryBiliaryCholangitis #PBC #IQIRVO #Elafibranor #LiverHealth #PatientAdvocacy #RareLiverDisease #ClinicalResearch #PatientVoicesMatter
Research update for educational purposes. Patients should discuss treatment goals and options with their hepatology care team.
Ipsen Unveils Positive Results for Iqirvo
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The French pharmaceutical company presented key clinical data from its Phase III study evaluating Iqirvo in patients with primary biliary cholangitis whose alkaline phosphatase levels ranged from 1 to...
Don't miss this important women's health virtual discussion hosted by the women of Delta Sigma Theta Sorority, Inc Glen Ellyn Area Alumnae Chapter of Delta Sigma Theta Sorority, Inc. #HealthEquity #womensupportingwomen❤️ Accomplished. Resilient. Carrying it all. But at what cost?
For so many women, especially high-achieving Black women, being everything to everyone has become second nature. But who takes care of the woman everyone depends on?
Join the Glen Ellyn Area Alumnae Chapter of Delta Sigma Theta Sorority, Inc. for an empowering conversation, “Superwoman Syndrome: When Strength Becomes Survival Mode.”
Together, we’ll explore the often-unspoken pressures of juggling it all, the impact on our mental and emotional well-being, and the importance of rest, boundaries, and self-care.
✨ Because your well-being deserves a place on your priority list, too!
📅 Wednesday, November 11, 2026
⏰ 7:00–8:30 PM
💻 FREE Virtual Event via Zoom
❤️ You don’t have to do it all, and you certainly don’t have to do it alone.
Register today using the QR code on the flyer, and invite a friend who deserves to be part of this conversation!
#SuperwomanSyndrome #BlackWomenAndWellness #MentalHealthMatters #SelfCareIsEssential #DSTGlenEllyn
Save the Date Thursday, November 11th-14th 2027
PBC Awareness is inviting the PBC community to join us next year in Philadelphia, PA at the American Association for the Study of Liver Diseases AASLD #tlm27. #savethedate 📅
#PrimaryBiliaryCholangitis
#liverhealth
#PatientAdvocacy
#thatsmykindaofmeeting
#aasld2027
#AdvocacyInAction
#TLM26
AASLD
#PatientAdvocacy
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Community Conversations: PBC Impact on Black Women
Real PBC Talk: Beyond Tired Official Teaser Trailer
PBC Awareness, NFP was a featured guest on Behind the Mystery: Rare Disease Stories on Lifetime
International PBC Awareness Day
FOX 32 Chicago Interview
Alfasigma pharmaceutical company gifted PBC Awareness with a generous $5,000 grant.
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