PBC Awareness - PBC Awareness " emerges as a transformative organization dedicated to serving those affected by Primary Biliary Cholangitis (PBC) in the United States.

PBC Awareness

6 hours ago

💚 PBC PATIENTS & CAREGIVERS: JOIN PHYSICIANS, SCIENTISTS & PATIENTS AT AASLD THE LIVER MEETING® THIS NOVEMBER!

The liver is critical to our health and well-being, yet **millions of Americans are impacted by liver disease**, and far too many lives are lost each year to chronic liver disease and cirrhosis.

For some people living with advanced liver disease, **liver transplantation becomes lifesaving care**. At the same time, the need for donated organs continues to underscore the importance of organ donation, education, research, earlier diagnosis, and better treatment options.

That is why bringing **physicians, scientists, researchers, patients, caregivers, and advocates together in the same room matters.**

📅 **November 5–9, 2026**
📍 **Denver, Colorado**

This November, the global liver community will gather in Denver for **The Liver Meeting®**, and **PBC Awareness, NFP wants PBC patients and caregivers to be part of it!**

For people living with **Primary Biliary Cholangitis (PBC)**, this is more than a medical or scientific meeting.

It's an opportunity to:

💚 Learn about advances in liver disease and PBC research
💚 Hear from physicians, scientists, researchers, and patient advocates
💚 Connect with other PBC patients and caregivers
💚 Become better informed about your disease and care
💚 Ask questions and strengthen your ability to advocate for yourself
💚 Bring real-world patient and caregiver experiences into conversations about research and treatment
💚 Help ensure the patient voice is represented as the future of liver care is discussed

📣 **CALLING PBC PATIENTS & CAREGIVERS IN DENVER AND SURROUNDING COMMUNITIES!**

You don't need to be a physician, scientist, or researcher to belong at The Liver Meeting®.

**Patients bring something to the table that no textbook, clinical trial, or laboratory can replace: lived experience.**

If you are living with PBC, caring for someone with PBC, or supporting a loved one on their liver health journey, **we want you in the room with us.**

PBC Awareness, NFP will be in Denver to **elevate patient voices, connect our community with education and resources, and remind the liver community that patients are not simply the recipients of medical progress—we are partners in creating it.**

👩🏽‍⚕️ **Physicians.**
🔬 **Scientists & Researchers.**
💚 **Patients.**
🤝 **Caregivers & Advocates.**

**One liver community. One room. Many voices.**

📍 Denver, Colorado
📅 November 5–9, 2026

**DON'T MISS THIS YEAR.**

💚 **You Are Not Alone.**

**PBC Awareness, NFP**
*Elevating Patient Voices. Empowering Lives.*

#PBCAwareness #PrimaryBiliaryCholangitis #PBC #PBCCommunity #PBCCaregivers #PatientVoice #PatientAdvocacy #LiverHealth #LiverDisease #OrganDonation #TransplantAwareness #RareDisease #Denver #TLM26 #TheLiverMeeting #AASLD #YouAreNotAlone📣💚 PBC PATIENTS: WE NEED MORE OF US IN THE ROOM AT AASLD #TLM26!

This November, the liver health community will gather in Denver for AASLD’s The Liver Meeting® 2026 (#TLM26)—and the PBC patient community needs to be represented.

The Liver Meeting isn't only a place for physicians, researchers and scientists. It's also an important opportunity for patients, caregivers and advocates to learn, connect and bring lived experience into conversations shaping the future of liver health.

If you're living with Primary Biliary Cholangitis (PBC), your experience matters.

💚 Learn about emerging PBC research and treatment advances.
💚 Meet other patients, advocates, researchers and liver health leaders.
💚 Better understand how research moves from discovery to patient care.
💚 Discover ways to become involved in advocacy and public policy.
💚 Most importantly—help make sure the PBC patient voice is present.

At PBC Awareness, NFP, we know what can happen when patients are given a seat at the table. But we don't just need one PBC patient in the room.

We need a community.

Whether you've been advocating for years or you've never considered yourself an advocate before, #TLM26 can be a place to learn, connect and begin.

📍 Denver, Colorado
🗓️ November 5–9, 2026
🌎 AASLD's The Liver Meeting® 2026

And PBC Awareness, NFP will be there! 💚

If you're a PBC patient or caregiver in the Denver area—or you're considering traveling to Denver for #TLM26—we want to meet you.

Let's make sure that when the world's liver experts gather, the people living with PBC are part of the conversation.

👇 WHO'S COMING TO DENVER? Drop a 💚 in the comments and let us know!

#TLM26 #AASLD #PBCAwarenessMonth #PrimaryBiliaryCholangitis #PBC #PBCCommunity #PatientVoice #PatientAdvocacy #LiverHealth #LiverDisease #RareDisease #PBCday2026 ... See MoreSee Less

PBC Awareness

2 days ago

OUR OCTOBER QUARTERLY NEWSLETTER HAS DROPPED!

And it's packed with everything you need to stay connected to our community!

Inside this issue:
*A look back at events
*A preview of what's coming up next
*Highlights from our community

Want to make sure you never miss an issue?

There's a link right inside the newsletter to subscribe — Don't miss a single update!

Together, we're elevating patient voices and empowering lives.
mailchi.mp/6760e82ea117/our-october-quarterly-newsletter-has-dropped ... See MoreSee Less

PBC Awareness

4 days ago

PBC Patient Ambassador Voices are Valued
Join National Organization for Rare Disorders, Inc. (NORD) Thursday, Oct. 22, from 1–2 p.m. ET for the October Rare Action Network webinar, “Make an Impact with Your State’s Rare Disease Advisory Council.” bit.ly/4ADrEIH

Rare Disease Advisory Councils (RDACs) give people impacted by rare diseases a meaningful voice in their state government and an opportunity to help shape important policies and programs.

Learn how #RDACs operate and ways advocates can advance and strengthen the work of their state's council. Register to attend: bit.ly/4ADrEIH ... See MoreSee Less