about us
PBC Awareness: A Revolutionary Force in PBC Education & Advocacy
PBC Awareness, NFP is emerging as a transformative organization dedicated to serving those affected by Primary Biliary Cholangitis (PBC) in the United States. The National Institutes of Health reports that there’s an estimated 50,000-100,000 people in the United States that have Primary Biliary Cholangitis (PBC).
We aim to address the growing challenges and unmet needs within the PBC community, filling a critical void by providing specialized support, education, and advocacy for U.S. patients.
What Is PBC?
Primary Biliary Cholangitis (PBC) is a rare, chronic, autoimmune liver disease. It can significantly impact a person’s quality of life and, if untreated, can result in liver failure or premature death.
A Diagnose Is Essential
A rapid and precise diagnosis is essential to determine the appropriate treatment. As PBC is a rare autoimmune liver disease, it is important that PBC is monitored by hepatologists (experts in diseases of the liver).
Your Case and Treatment
Your doctor will examine your case and prescribe you the treatment(s) that are needed, also according to your response to the treatment(s) as measured by blood tests. In addition, he/she will assess possible problems which may occur during the course of the disease, including other conditions related to PBC.
Services Available
Join PBC Awareness today and you'll receive full access to all patient services, exclusive content, and the Bear Facts magazine.
REGISTERING WITH PBC AWARENESS IS FREE FOR ALL
BE PART OF A SUPPORTIVE COMMUNITY & MEET OTHERS AFFECTED BY PBC
ENJOY EXCLUSVE CONTENT & EVENTS
RECEIVE OUR QUARTERLY PBC MAGAZINE, THE BEAR FACTS
ACCESS OUR SELF CARE APP PACKED WITH TOOLS & INFORMATION
HAVE OUR SAY, SHAPE OUR WORK, & INFLUENCE THE FUTURE OF PBC
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